Social Media Burnout

I have been thinking a great deal over the weekend about the fact that I have pretty much disappeared from a great deal of social media in general diabetes and other social media in general. I have noticed a great deal of me not really being into it all. I think after several years of constant social media I am tired of it all. I know recently with my RA flare-up it really puts things in perspective for me in some ways as well.

 I know at times I love to be connected but other times I feel like I need the time to deal with other aspects of life. I know with me being so tired some of the Facebook  updates of my old friends seem very unimportant but at least the diabetic advocates updates have purpose. Social media is almost feels over done. I think I am definatly burnt out on social media. I love the diabetic advocates and diabetics in the doc but I know I have slowly been drawing myself away recently.

I love being involved in the diabetic community but recently I have felt like everything has been too much. Honestly having less energy and very little energy makes me also value the time I do have. So I know I would love to join in more but right now I think I just need a time out of sorts to get to a place again where I feel like sharing and joining in. These days with me barely keeping up my life in general and adding more things on that I feel I need to do feels like it is just way too much for me.

I know my blog has not been as consistent because of all the aspects of my life getting even bussier. I am trying to get myself back to where I enjoy social media like I used too. I am hoping in the next couple of weeks I can get myself to where I like to be. I have enjoyed my interaction with each of you and I hope you understand that social media can burn you out and at times I think the only cures is a break from it all.

Wonky Test Results

I know yesterday I got the test results for the recent blood work. As usual I am not testing positive for all the typical Rheumatoid Arthritis tests which has been that way since the beginning. I go through this every-time I go to a new Rheumatologist they are surprised by the lab results but I know my mom never  had all the test come back positive either. In fact a great deal of people who are diagnosed with Rheumatoid Arthritis only test positive for some of the tests. So it is really through tests, examinations, and family history they used to diagnose the Rheumatoid Arthritis. So it can be tricky when my results don't always match up with what they expect. Normally after they review the case they see that the original diagnosis does fit. I know it can be tricky being the patient with the RA diagnosis and when it is a Dr. using what information they have to diagnose the condition. I know they always seem to think I have lupus but I don't have the typical symptoms or issues but my symptoms do match RA.

So I know my next appointment the Dr I am sure will want to run more tests which normally happens. I know they normally try to test for quite a few other autoimmune diseases such as lupus,Sjögren’s syndrome, myositis and scleroderma. The bad part of lab results vary as well and can cause issues with the types of the tests the Rheumatologist are running. So this whole process is honestly drives me crazy because even if I had other medical records from my previous Rheumatologist they would still be rerunning them again from experiences. The good part is that I am currently on the drugs and I am seeing results which will also good for the Rheumatologist to see as well. 

So I am sure I not done with the test but that is okay. One major issue I have noticed with taking Methotrexate is that it is causing mood changes but one benefit it the first two nights after taking Methotrexate my blood sugars flat line around 80-90 range through the whole night with no lows which is always nice. I am not sure why the drug is doing it but it really can be so nice to sleep all night with no interuptions.

Need More Time

I have been feeling with my recent RA flare-up that I really need to give myself more time for me. I have been pushing myself too much for a job that has not appreciate of all the hard work and the months of overtime I have done to help the department get all the work done. I know in the long run if I continue at this pace I will end up hurting myself financially because of emergency room visits or increased Dr visits. I know if could go back to just working not as many hours I would be allowing my body to handle all the stress that are thrown my way.

 I think the past two years I have been slinking by but not really allowing my body the rest . I know since I do have issues I feel this obligation to give so much more than others might but I now feel nothing but regret for the decision because I will never be appreciated or understood. I am working on finding a better work option that will allow me to properly care for Duchess and myself but also enjoy our lives more than we currently do. I feel stuck and quite unhappy with where I am at and I know I deserve better. My RA flare-up is a great reminder of why I need to leave. I know my boss said I looked fine and she had not idea I was in bad pain. The interesting thing is that an old manager I had noticed how tired I looked and told me I should use more of my sick leave if I need too. She said I looked exhausted and not quite like myself.

I guess that tells you a great deal about how little they notice but I also need to in some ways show when I am tired instead of covering things up. I have always been bad about showing if I am sick or not allowing people to know when I am in pain because I like to deal with things on my own. I know I need to work on better communication during these times but I also knew that the response would be lackluster as well. I know I don't really explain how difficult diabetes is to those around me because I find some will not really understand. I know when I had seizures at work several years back I know a coworker at the time said the event really made her understand how complicated it was but also how much work must be involved as well. I know as time goes on people tend to forget these events which makes things more difficult.

Local Diabetes Meet ups

I have been in a meet up group locally for several years. For a while it was run by a younger woman who then got engaged and was then busy planning her wedding so she stepped down on running the meet ups. The group was on meetup.com which made it easier for people to find. I there was quite a monthly expense to keep the meet profile active. So the person who took it over decided to look for a sponsor of the group. They did find a diabetic organization to fund the monthly fees that keep the meets up active and allows for further meet ups. The problem is that they have ruined the meet up group in many ways. They are constantly throwing the fundraising events for the group as a meet up we all should be going to. I volunteer when I want and don't feel that pushing it on people is appropriate either. They don't have very many meet ups that allow for interaction between the people in the meet up groups except for an occasional pot luck. I like pot lucks but the issue I have is that taking a service dog to another persons home is very difficult. I hate to impose but I am not willing to leave Duchess at home either. So I rarely ever get to attend the meet ups.

I always enjoyed the meet ups when I am able to attend but it is sad how a very well know diabetes non profit organization has really ruined the meet up group for all. I am thankful they took over the funding of the site but sad that they have pushed their agenda too much into the group. I know a great deal of the original people from the group rarely attend anymore. I wish we had found a different sponsor who is not as pushy with their agenda. I really never thought a group sponsoring would think they had rights to put all their events on the calendar but I should have guessed because they are a board member of this organization. I am not a fan of the organizer of this group because he has on occasion expressed his dislike of Duchess but what I think the real issue is that when you see someone with diabetic complications it is scary. I know because his daughter has it as well that I am sure that is scary but realizing that things happen is also part of life. I know I miss the days when I could attend events that were not centered around an organization but rather a meet up of a group of people of diabetes who want to hang out.

Satisfied With Improvements So Far

It is so nice to wake up today and my knuckles are not bright red at every joint. My body is not quite as tired as last week I am still resting and when running errands was really tired afterwards but overall I am starting to feel like I can take on a little more. I am not back to my regular self where I finish up everything I normally do around the house but I will get there. I am cleaning but splitting it up over several days like cleaning the bath room one day next day steam cleaning my floors or vacuuming one day. That way everything is not quite as overwhelming. Last week after coming home from work some days I would cook dinner and I was wiped out after cleaning up and eating.

I know this week I am no expecting a dramatic change in my energy over the next couple of weeks I will really start to regain my energy and ability to take on more tasks. I do feel much more confident about things verses last week which is good. I have had two nights after taking the Methotrexate where I felt a little dizzy but I am not sure if that will go away or not. I will find out Thursday night once I take the Methotrexate again if that will be a side effect that might be around for a while. I am hoping not but I will see.

Taking predisone has been interesting. I have been able to keep my blood sugars under 158 the whole time which is really good. I did lower my high threshold to reduce a big rise in my A1c rates because of the predisone for me what has really helped is that I use my food calculator on my pump and I take the units and do injections of units for example 4 units and let say .60 and then I sent the .60 through the pump. I know it seems to keep the blood sugars from soaring or moving quickly. I also increased the pre-bolus time to reduce a rise of bloods sugars well.

I want to keep things tightly controlled as possible. I know my Alc is coming up soon and I want to keep things in tight of control as possible. My Endocrinologist know I needed to take predisone and supported my decision to do so. They expect some rise so I am not too worried because they understand that I am going to do my best. My Alc are usually in range so a slight rise will not throw me off too much. I know I like to keep things well controlled with having the Retinopathy but everything seem to be fine right now. Overall things are much improved and can't wait for things to return to normal. I know things are pretty good right now but I am taking things easy and not pushing myself too much like I was the first week I had at the beginning of my flare up. I know I tend to push myself too much as it is but I am glad I have given myself the rest I need to handle most of what I need to get done.

Rheumatologist Appointment

I am very happy that the Dr. decided that I was going to be put on Methotrexate for my Rheumatoid Arthritis and thankfully it has no impact on vision. The bonus of taking Methotrexate is that it reduces the chances of heart disease as well but also most importantly it helps prevent further damage to my joints. The bad news is that my left wrists looks like it has some permanent damage from RA. There is also some possible permanent damage in my ankles as well. That is all less than ideal but I just hit 15 years of having RA and am not really surprised but the Dr. seemed more upset about it than me but I guess I expect some damage. I know my Diabetes has taught me that you do your best but you can't prevent it all. All your can do at the end of the day is did your best job you could do. I know my mom experienced some permanent damage to her joints as well. Thankfully not taking plaquenil like I have in the past this drug prevents further damage and also deals with the inflammation as well. Where plaquenil affected the eyes and only dealt with inflammation symptoms. I did a whole bunch of blood work and x-rays to examine what damage has been done and to better help them determine if I need a biologic drug as well most people probably know them as Humira from all the commercials.

I was a little overwhelmed with Methotrexate being a chemo drug. The difference is that I am taking a small dose and they are taking large doses during Chemo. There is a slight increase in a few more hairs lost than usual every month but overall very little hair loss. Most people do well on Methotrexate and with few side effects and I hoping for the same. I did do my home work and was not really sure what drugs they would start me on. The intresting thing about Methotrexate affects you folic acid levels so a prescription of folic acid is required by my Dr. which makes sense. There is some real negatives if you are wanting to have children you can't take the drug until you have been off the drug for at least 90 days. Overall it is weird to think that sending poison into your system would be effective but it seems to be so.

The bad part for me is that to get results quickly I need to take predisone which can cause issues for blood sugar but the Dr. left the decision up to me. She normally never does for diabetics but she said my hands looked like they were painful for me to use. So I decided to go for it because in the past I have gotten my energy back and felt better withing a day or two of starting predisone. Thankfully so far my blood sugars have been pretty good overnight they were normal. I was having a great deal of lows this week but now it seem today I am staying around 95 straight across my Dexcom which is what I like to see. Hoping to keep ahead of bad highs if at all possible. I did call my endocrinologist and they wanted me to send my Dexcom information weekly to help me make the process easier in the long run. My PA said she was happy i picked to go with the predisone because if I had great results using it in the past and helped reduce the pain they thought it was a reasonable thing to do. So overall my visit to the Rheumatologist has been good but I guess I will see over the next couple of weeks to next couple of months if the Methotrexate is work for me or not. I am hopeful to have good results and it would be great to get back to feeling like myself again. Plus I would love to get back to the gym again.

Even More Thankful for the Good Days

I know having RA flare up creates a great deal of obstacles which I have faced over the past 15 years. One big obstacle for during an Rheumatoid Arthritis flare-up is I have trouble walking up stairs, trouble opening bags or using hands at times, issues with repetitive motions. I know when I was 19 years old it was my first year of college. I know everything started out great until January when I started noticing little issues with pain in my knees and stiffness. I know the college had this long stair way to get into the college and one day I new for sure their was an issue. I could not walk all the way up the stair way without being in a great deal of pain. I was exhausted and irritable. I know I was noticing how much effort it was taking me to just get up the stairs that I used to fly up and now I had to stop several times before I would make it to the top of the stairs. I know back then I was really scared as to why this could be happening. I did tell my mom right away and she took me to her Rheumatologist who diagnosed me with RA after some tests and examinations. I know my mother like me had RA and my great grandmother also had RA. Here RA was so bad that her fingers curved to the sides because of the joint damage.

Thankfully my joints all look normal but I also know when I have a flare up that it is doing damage to my joints. I am really thankful that most of the time my RA does not seem to affect my blood sugars much except when on steroids but hopefully I can get off of them quickly and get back to my normal energy levels soon. Having RA really makes me appreciate the times when my body is functioning at a a normal levels. When it is not it become really frustrating and creates issues for me a work and home. I know currently I am very thankful for each day that is pain free for my joints and I know the days that are not our a great reminder of why I should be thankful for all the good days I do have. I try my best to keep things in perspective but this time my RA caught me off guard and I have struggled a great deal more with the feelings of anger and resentment because of my lack of energy. Thankfully I know feel like I am in a better place because I realized that I also need to be a little nicer to myself during a flare up and allow myself the time to rest.

Dealing with RA

Thank you for your patience. I have been dealing with a Rheumatoid Arthritis flare up and have not been handling it all that well. I know in fact I have been quite angry about it in general which not my normal response but I know I already have so much on my plate I can see why I had this reaction. I get angry mostly because an RA flare up equals me being exhausted and feverish. My body hurts a great deal and I feel very cranky and testy. By the time I get home every night I am exhausted cooking dinner or getting anything else done becomes really difficult. This past weekend I ran a couple of errands and have to come back home for a bit to take a nap so I could finish running my remaining errands. It is really sad how little energy I have during an RA flare up. I know I am frustrated with the fact the one of the few medications I can take affects my eyes and after getting my retinopathy where it should be I am not wanting to take any risks with my eyes even if it equals more issues with my RA. I am hoping to find another medication without the risks to my eyes but that will be effective to help me prevent further flare ups if possible. I am not sure what my appointment will bring but most of the time I get prescribed steroids which help with the symptoms of the flare ups but do some damage to my blood sugars.

I think when you are handling several autoimmune issues things can get very complicated so quickly and you have to make choices like I have made in the past to not do treatments because the side effects of the treatments are not worth it in the long run. So I am really hoping they have some options that are better than last time I went to a Rheumatologist. I am so tired these days which are now equaling a great deal more lows which is less than ideal. I have been trying to hard to keep up with everything when I should be trying to rest. So I have decided that things must wait till I have the energy to deal with them. I am extremely tired and hoping for some pain relief. As I am typing this right now it is very painful and less than ideal but doing administrative work I have to deal with the pain so I can get my job done but that makes for a very long day.

Emotionally this has been a very rough period of time so I am trying my best to keep things as positive as possible but can be difficult with my job increasing expecting more and more of me when my body is already a full capacity and can't really handle much more at this time.